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NetWellness provides the highest quality health information and education services created and evaluated by faculty of our partner universities.
Tuesday, December 2, 2008
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NetWellness provides the highest quality health information and education services created and evaluated by faculty of our partner universities.
Tuesday, December 2, 2008
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Inherited Disorders and Birth Defects |
Research being done on myotonic dystrophy08/16/2008 08:45AM |
I was wondering if you heard of any trial studies going on to cure Myptonic Dystrophy?
The National Institutes of Health has appointed The University of Rochester Medical Center in Rochester, NY, to manage the National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members. The purpose of the registry is to enroll and conduct research studies, some of which are aimed at finding cures for the disease. The website is listed below.
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Anne Matthews, RN, PhD Director, Genetic Counseling and Family Studies Associate Professor Department of Genetics School of Medicine Case Western Reserve University |
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Please note: only your personal physician or other health professional you consult can best advise you on matters of your health based on your medical history, your family medical history, your medication history, and how information from any of these databases may apply to you. Neither University of Cincinnati (NetWellness) nor any party involved in creating, producing or delivering this web site shall be liable for any damages arising out of access to or use of this web site, or any errors or omissions in the content thereof. (More) |